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Medical Whistleblower Advocacy Network

Human Rights Defenders

Patients Not Consumers

10 Principles of Independent Living
Source: Statewide Independent Living Council of Illinois

1. Civil Rights – equal rights and opportunities for all; no segregation by disability type or stereotype.
2. Consumerism – a person ("consumer" or "customer") using or buying a service or product decides what is best for him/herself.
3. De-institutionalization – no person should be institutionalized (formally by a building, program, or family) on the basis of a disability.
4. De-medicalization – individuals with disabilities are not "sick," as prescribed by the assumption of the medical model and so not require help from certified medical professionals for daily living.
5. Self-help – people learn and grow from discussing their needs, concerns, and issues with people who have had similar experiences; "professionals" are not the source of the help provided.
6. Advocacy – systemic, systematic, long-term, and community-wide change activities are needed to ensure that people with disabilities benefit from all the society has to offer.
7. Barrier-removal – in order for civil rights, consumerism, de-institutionalization, de-medicalization, and self-help to occur, architectural, communication and attitudinal barriers must be removed.
8. Consumer control – the organizations best suited to support and assist individuals with disabilities are governed, managed, staffed, and operated by individuals with disabilities.
9. Peer role models – leadership for independent living and disability rights is vested in individuals with disabilities (not parents, service providers or other representatives).
10. Cross-disability – activities designed to achieve the first five principles must be cross-disability in approach, meaning that the work to be done must be carried out by people with different types of disabilities for the benefit of all persons with disabilities.